So Much Is Going On!!
I feel like it's been forever since I've blogged...wow!!! Just like the title of this post states.....there's so much going on right now....I don't know what day it is. With Peyton starting middle school, and having two kids in high school (freshman and a senior) Bernard and I feel like we can't keep up sometimes. Well, first off let me start by saying that we finally launched our Non Profit Peyton's Allergy Shield Of Hope!!! I don't know if you all remember me speaking about this at the beginning of the year, I thought long and hard after having such a difficult time with Peyton and her food allergies in the 5th grade. I thought, there has to be a better way to navigate this system with the school. So with that being said, I reached out to a friend of mines that I knew worked in the healthcare industry as a research coordinator and I asked her where do I start. This has been a long year getting the right people together on my team, but we finally got it going...I'm so excited to see what 2020 has in store for Peyton's Allergy Shield Of Hope. Middle School for Peyton has progressed pretty good I must say, I don't have any complaints. The only complaint I have is the fact that Peyton's 504 Meeting with the school was in August of 2019 before the school year started. I requested for accommodations to be made for Peyton, it is now December 11th, 2019 and Peytons 504 Plan has not been finalized yet. I asked for accommodations, the school had to work with the districts 504 coordinator and our pediatrician....when I tell you I have not heard from the school or the district....I am not exaggerating. Last I was told, which was about almost 2 months ago was the principle was still in talks with the district regarding her accommodations. I haven't decided on if I want to wait until January when she returns back from Christmas break to reach out to the school or if I want to do it now...but let's be realistic....my husband had his meeting with the 504 Coordinator at the school, the school nurse, the assistant principal, and one of Peyton's teachers the second week in August. It is December 11th and we are still where we was in August when we had our initial meeting. Peyton's had some episodes at school this year that made us schedule a trip to the see her allergist. On the first day of school she had a reaction to what we think was her breathing in her allergen. Peyton was at lunch, at the lunch table with a group of friends and she was sitting across from someone who was eating a granola bar that contained nuts. Peyton started to break out in hives, thankfully the staff at in the cafe noticed and escorted Peyton to the nurse where they administered Benadryl. The next week the same thing happened again, needless to say it scared the mess out of me. I told Bernard that I got so comfortable and even started to second guess myself....thinking maybe she out grew her allergy, then this happens. We visited the allergist about 3 weeks ago and, not sure if I'm returning back to him...I asked him if he wanted to retest her for her nut allergies and he told me no. With her reaction being so severe the first time, and she having to have two doses of the Epi Pen, being so close to death....he said no he didn't want to retest her for her nut allergies or shellfish. I'm kind of at a lost for words with the school issue here and I need to figure out my next step, because mad doesn't even describe how I feel.